4 months now.Īny tips you can give to help keep his strength up (fall risk so they rarely let him walk in hospital anymore)?ĭoes anyone out there have first hand experiance with the transplant team at Mt. His MELD score fluctuates between 28 & 34, both of which are considered high need due to my dad's blood type, and he's been considered high need for approx. The diagnosis is non-alcohol related cryptogenic cirrhosis with hepatorenal syndrome. This has all been extremely fast - except for getting the transplant, which (of course) seems extremely long. Also, they started him on dialysis about 6 weeks ago, so will probably need a kidney transplant now too. Presently, my father been hospitalized for the past 2 months, with only a few days out of the hospital here and there, mostly in hospital for ammonia levels or other HE type symptoms, although the most recent/present hospitalization has been blamed on dehydration from too much fluid being drained during paracenthesis 2 weeks ago (has to be done weekly now). Suddenly his consultation at Mt Sinai in Manhattan turned into an evaluation, and an immediate listing on the transplant list at that hospital (late February/early March 2014) with a "beginning" MELD score of 18. Soon though the hospitalizations began, coming once per month beginning in January, mostly due to extremely high ammonia levels(yes, been on lactulose for months now). (I believe the biopsy was the "trauma" that caused the ascites to start.) The doctors assured him that he would be fine if he just lost some weight and exercised. Shortly after the biopsy, the ascites began - early December, I think. Next came the biopsy and ultrasound confirming fatty liver and then cirrhosis. This all started in late October/early November 2013 with blood work results showing some elevated liver enzymes, no symptoms up to this point. My father was always a very healthy and active man until his diagnosis several months ago. Also, I am especially curious about other people's experience with Mt. Although every case is different, I'd like to find out how similar our experience is to others' and also get some suggestions as to what else we should/could be doing to give him the best chance possible for a transplant. I'm writing regarding my father's liver disease and our experience while waiting for transplant. Are there any advice/ tips you could give me from a caregiver's perspective that might help us better care for him? Any and all responses would be greatly appreciated. I work full-time and try my best to help keep my family's head above water, but i constantly feel like im failing. I'm 30 yrs old, my sister is 33.we both moved back home last year to help our Mom care for him (both physically and financially).
#MELD SCORE 8 LIFE EXPECTANCY SKIN#
His arms/legs are atrophied, cannot control his bowel/bladder function, and his skin is so brittle that it literally falls off when we try to pick him up or bathe him. Last week he left the hospital AMA and we have been struggling to properly care for him. Since then, his physical/mental state has continued to spiral out of control w/ frequent stays in the ICU (his MELD score was 28 in '17 but his hepatologist told us that it has nearly doubled since then). He was intubated in the ICU for a couple weeks in Oct 2017. However, his health rapidly declined within 5-6 mos. Initially, his MELD score was relatively low in Dec of 2016 he went in for a paracentesis and his doctor prescribed him diuretics(Lasix and Aldactone). Hello everyone, my father is 62 yrs old and was diagnosed with alcoholic cirrhosis approx 2 yrs ago.
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